Tag: Memories

Be Your Own Best Healthcare Advocate

Today’s a new day! I have been what my bride calls a “Professional Patient” for almost twenty-three years now. During this journey, I have encountered health professionals who appeared to be more concerned about egos and status than they did my well-being. For some medical providers, I was just a name on a file who happened to have very good health insurance coverage. They knew more than me because they had the title of Doctor attached to their name. Being so foreign to how the world of healthcare worked, Laura and I just went along with whatever the doctors or medical professionals directed us to do. They’re the professionals. They know what’s best for me. Right? In the famous words of Lee Corso from GameDay on ESPN, “Not so fast my friend.”

As Laura and I began to navigate this new world called the healthcare system, we found out that the most important voices were our own. If we did not stand up for my medical needs, who else would? That’s when we realized we needed to become not only our own healthcare advocates, but we needed to help other patients walking through their own crazy beautiful health journey. We recognized being a “Professional Patient” was actually a full time job.

Over the years, we have had to privately and sometimes publicly voiced some of my medical concerns. Which is not naturally part of my DNA. Or so I thought. But this is my life and my health we are talking about. As Laura and I have weaved our way through the world of health challenges, here are some of the most important pieces of advice I believe I can offer for those walking through their own health journey.

* Do not wait to speak up and share your thoughts and concerns. You know your body better than anybody else. If something doesn’t feel right or sound right speak up. If your medical team truly cares for you they will welcome this dialogue.

*Do not be afraid to get a second or third opinion. This is your life. We only get one.

*Do not be afraid to change doctors or hospitals if needed. Find a medical team that you truly feel has your best interest at heart.

*Have a great support system that can speak up on your behalf when you are unable to.

*Never stop learning about new treatments and medications that pertain to your health issue. Do not hesitate to share that information with your medical team. Once again, if your medical team cares for your well-being they will welcome those conversations.

*Take the time if your health allows, to help someone else navigate through this overwhelming healthcare system .

*Remember, it’s called practicing medicine for a reason. Your doctor and medical staff are human. Mistakes can happen. Allow those to be a teaching moment for all parties involved. Be kind and respectful, but firm.

*Be patient with yourself and your medical team. The healthcare system can be messy, stressful and complicated. Do not be afraid to show a little grace to yourself and others.

I really hope this helps someone navigating through a maze called the healthcare system. Be Your Own Best Healthcare Advocate. ~OC

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Significant Life

Today’s a new day! What is a “significant life?” That is a question many will be asking as we move into a new year. I believe a significant life can be measured by having great worth and value–forged by carefully chosen crossroads leading to the sum of a life well lived. It is a life whose moments are not wasted on the material or ordinary, but excavates the ordinary as sacred because God is there.

I am eternally grateful for meeting God at a early age; that He pulled me close and began to open my eyes to eternal matters–but I regret the times I’ve wandered through the “ordinary” days grumbling and complaining as I waded through the difficult days, and frivolously moved carefree through seasons which could have been spent with more purpose.

As five decades of life are closely coming to a close, the brevity of life as described in Psalm 90 bears heavy on my heart and one thing I know: All that matters is living for Christ.

I do not want to waste another single day of my life. I desire to truly live my life for God until I breathe my last breath. I desire to live all out for His glory–whatever that may look like in this journey called life.

As a young man, I am not sure I took seriously the warnings of the wise men of God, “Don’t miss out on God’s will for your life!” I wasn’t exactly sure what His will was for me, and I am sure at times I missed it. Now that I’m older, His will seems more clear, single-focused, and less complicated. I can sum it up in three words: Simply Glorify Him.

The driving passion of my life is expressed by God in Numbers 14:21:

Indeed, as I live, all the earth will be filled with the glory of the Lord.


But what does that look like? For me, I believe Jesus gives us the answer in John 15:8 “My Father is glorified by this, that you bear much fruit, and so prove to be my disciples.”


As I write this post, emotions are swirling all around me. Tears, Missed Opportunities and Regret to name a few. But one emotion burst through like a ray of sunshine… Hope. That deep down hope that feels me with peace and promises for a great and exciting life. A hope that sustains me through the toughest storms

I want to challenge you to stop what you are doing right now and consider these questions:

Is my life significant?

Am I wasting my God given gifts and talents?

Am I bearing fruit?

What is the driving passion in my life?

How can I best use my remaining days to live out the purpose God has created for me in the remaining time I have on earth to bring Him glory?

I believe the answer to those six questions can lead us to living a significant life. ~OC

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Happy New Year!

Today’s a new day! Happy New Year! Welcome to 2025. Not sure about you, but I look forward with great excitement, wondering what God has planned for me this coming new year. What new opportunities will reveal themselves? What new lessons will present themselves? A new year is full of endless possibilities.

As we gear up for a new year, I believe it’s important to take a little time to reflect on the past year. Doing this I believe helps to view each year as a season, understanding that God is Sovereign and has new seasons of experiences and growth to make us more like Him. I can testify 2024 was full of many different emotions. There were moments of grief, but there were also times of joy and happiness. A year filled with many memories and lessons.

As we take some time to reflect back on 2024, it helps us to remember that God is in total control and that we are constantly growing as His children and that He knows the plans He has for each of us. Plans of new wisdom, insight and understanding that He wants to impart to us, if we will allow Him to.

It also gives us an exciting and fresh new outlook of the coming year and enables us to leave the past where it belongs. Not that we forget the past but learn from it and move forward into our present future with open hearts and minds to receive whatever God has for us.

With that said, here are some ways we can look forward to in 2025.

New Beginnings: Start out 2025 with a fresh point of view of new experiences, opportunities, memories and blessings. Have an open mind and heart to where ever God may want to take you with full assurance and confidence that He is always with you. (Matthew 28:19-20)

New Possibilities: There are no limit to what God can do in your life and nothing is impossible with God. God opens doors that no one can shut and also closes doors that no one can open. The possibilities are endless with God. (Philippians 4:13)

New Plans: We walk into 2025 like a blank canvas. Be in prayer for what God has planned for you and be willing to walk by faith in obedience as you follow His leading. Remember that His plans are always for good and not for evil to give you a future and a Hope. (Jeremiah 29:11-13)

New Purpose: As you look ahead, God always has a plan and a purpose for what you will go through and experience. Remember that God always has a reason for what He allows in your life and through it you can trust Him completely. (Proverbs 1:3-5)

New Provisions: The Bible says to not worry about tomorrow for tomorrow has enough worries of its own. In 2025, trust in God who knows everything you need. He is our Hope and our Provider. God is faithful and He will do it. (Matthew 6:1-33)

New Growth: When we are willing to let go and let God work in and through us, He will always stretch us and grow us. It is an important part of the growth process. I pray we will all continue to grow in our relationship with God and in His Word. In 2025, allow God to mold you and make you pliable in the potters hand and then watch the master craftsman work in your life in amazing ways.

New Wisdom: With new experiences and new lessons comes new wisdom and insight. Always make it a priority to seek out wisdom as hidden treasure or fine gold. In Proverbs it says that it will be like a garland of grace around your neck and honor you and present you with a crown of splendor. (Proverbs 4:7-9)

Renewed Peace: As you go through new experiences and new adventures whether they are good or bad, my encouragement is to keep your eyes fixed on God and He will give you rest and peace, because He is our peace and loves us and cares for each of us deeply. (John 16:33)

As we spend some time in reflection about 2024, let us give thanks to God for getting us through another year as we look forward to what He has for us in 2025 and praise Him that He is faithful and worthy to be praised. ~OC

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My Tribute to President Carter

Today’s a new day! The world has lost a giant in President Jimmy Carter, the man whose impact endured far beyond his presidency. To call him a statesman is accurate but insufficient; he was a humanitarian, a leader of conscience, and a model of humility. I had the profound honor of sitting in on President Carter teaching Sunday School Class back in 2019. One of the highlights of my life. From that visit, I developed a beautiful and life changing relationship with the people of Plains, Georgia. The hometown of President and Mrs. Carter.

President Carter’s long and inspiring life reminds us that our lives are about impact, not image. It’s about making choices that prioritize others over self. From the peanut farms of Plains, Georgia to the corridors of the White House and places around the world, his journey was always one of service.

As we remember President Jimmy Carter, let us carry forward his legacy of humility and purpose. His life was a testament to the idea that, as human beings we are stewards of something greater than ourselves.

President Carter once said,

“My faith demands that I do whatever I can, wherever I am, whenever I can, for as long as I can, with whatever I have, to try to make a difference.”

Thank you, President James Earl Carter Jr, for showing us what leadership, humanity, and faith in action truly means. Your amazing legacy will continue to inspire the world. Rest in peace Mr. President. ~OC

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Find Those 3am Friendships

Today’s a new day! Life is full of wonderful and difficult moments. That is why it’s so important to surround yourself with people who will encourage and support you. Those who will step up in not only the good times, but more importantly those who step in during the toughest moments in life. Those moments when we find it difficult to breathe. We each deserve to have people who will walk alongside us to support us in every season of life. To help us become better people.

Each of us is worthy of deep and meaningful friendships. We have much to share with others as we walk through this journey called life. If you are in a place where you do not feel valued or supported, if you haven’t found your “3am friendships”, I pray you will spend some time seeking out those important relationships. Warning! You might have to step out of your comfort zone to find those life changing friendships. Do not neglect the opportunities God has placed before you to find those friendships. There will be moments in life when you may feel that no one understands you. There will also be moments when God sets you apart, in order to grow you and reveal something fresh in your life. But there will also be moments for you to dive into community and friendships. A time to find your “3am folks.” Do not miss those amazing opportunities. ~OC

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A Day In The Life

Today’s a new day! Ever wondered what a day living with chronic illness and health challenges looks like? Today I will take you on a journey into the twist and turns of a day living with long-term health issues.

From the moment I wake up, I’m already facing barriers. My chronic illnesses make it difficult to get going. For those not aware, based on my health issues, I have slept in a recliner for about the past twenty years. It’s just too hard to get in and out of a bed. Every day is a balancing act where I have to be mindful of my energy levels and make sure that I’m taking time to rest. 

An Introduction To My Health Journey:

In 2002, I was diagnosed with multiple forms of arthritis. That year was filled with a lot of experimental treatments. Then in 2003, I was diagnosed with cancer. Thankfully I was able to have surgery to remove the tumor and never had to walk through the struggle of chemo and radiation. Let’s speed things up. From 2007-2024, I have been diagnosed with Parkinson’s, Myasthenia Gravis, Gastroparesis, Type 2 Diabetes based on all the steroids, had a stroke, diagnosed with cluster headaches and just a few months ago was diagnosed with early onset dementia. That’s my rap sheet!

What My Night and Morning Looks Like :

Based on my neurological issues, I am up and down most of the night. So I never wake up feeling rested. I wake up stiff, so I need to move around and take a host of medications in the morning. Of course meds have side effects, so that can be difficult.

Since I deal with gastroparesis, eating has been a major issue for many years. That makes taking in fluids and food a huge and painful task. So every meal, every day is an adventure.

My mornings are dedicated to spending time with God, journaling and trying to exercise. For me, walking is the best type of exercise for me. I never know how many laps I will be able to get in. I have to be careful not to overdo it. If I do overdo it, my body will pay for it the rest of the day. I spend some time each day for reflecting on life and looking at how I can hopefully encourage others as I continue running this journey. These days, I tend to take a lot of short cat naps. Over the last year, the pain has increased, so that’s a daily struggle. Unfortunately, pain meds and gastroparesis do not really care for each other. So most days, I just live with the pain.

One thing I choose to do everyday is get dressed. I never lay around in my sleeping clothes. It makes me feel good to get cleaned up and get dressed.

My favorite part of any day is spending time with my bride and friends that choose to reach out. Spending time with loved ones is very important to me. I love sitting around and enjoying great conversations. Also, I try to read every day. My love for reading has been challenging the last few years, since it’s hard to stay concentrated. I also spend time listening to music each day. Music can make everything a little bit better.

In the evening, Laura and I like to talk about our day and possibly watch a little television. Based on my day, my bedtime varies. But since I sleep in my recliner, I can fall asleep anytime my body and brain allows me to. Every night is an adventure.

What I consider a daily self-care must do:

Writing about what I’m grateful for in my journal helps me remember the positives, even on those really hard days. Living with long-term health conditions can be exhausting and can be very negative if you allow it to get on top of you. 

Several people have asked if I had one day without pain and could step away from my health journey what would I do?

I would lace up my running shoes and go for a very long run. For those new to my journey, in my healthier days I was blessed to complete 350 marathons.

Another question people asked me a lot: Is there anything I would like to share about daily living with chronic illness and life challenges?

There’s a lot, but I do not want to make this post any longer than it already is. One of my hopes is, people will realise that we never know what someone else is really going through. So be kind and respectful. It doesn’t help when people tell me how I should be living out my health journey. Just be supportive and walk through this journey with me.

By sharing what my day to day life is like, I hope I can raise awareness of the bigger picture as people only see snippets of my journey online or see me on my best days in person. I am not sharing this for pity or sympathy and I am not complaining. I just want to give you some insight into this crazy beautiful health journey.

The Takeaway:

Writing about my day living with chronic health issues has been quite eye opening to me to see how much life has changed over the years. I have a strong need to celebrate the love and support I have received over the years from family and friends. Writing this post has let me see how faithful God has been to me, as I continue to run this beautiful journey.

I hope that you have found this post to be a helpful insight into life with with long-term health issues. There are so many people walking through a tougher battle than me. So if you know someone dealing with chronic illness, take the time to reach out to them and support them on their journey. ~OC

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The Empty Seat

Today’s a new day! As I wake up on this Christmas Eve, my thoughts turn to those walking through hard times this holiday season. On this day before Christmas, some are experiencing their first Christmas season with an empty chair at the table.

This year like so many, I have experienced the loss of loved ones.

The loss of a parent, grandparent, spouse, sibling, niece, nephew, friend or the tragic loss of a child creates a hole begging to be filled and a seat at the table that will remain empty.

At times these precious family members may feel deserted. By God, by life, by family and friends who don’t know what to say, so they stay away.

So what do you do for someone who is grieving on what should be one of the merriest days of the year?

I pray the following helps.

1) Your presence and words matter

Saying I can’t imagine…

Nothing more. Nothing less. Those words embrace them, their loss, and their pain, showing you care. Deeply. And you are there, for them, with them, regardless of the pain it causes you to share in theirs.

When we add words after I can’t imagine, we are likely to add our own emotions, thoughts and feelings. Just simply acknowledge their feelings, pain and loss.

I can’t imagine…yet I care. Simply be with them.

2) Say the name of their lost loved one. Hearing the name of that precious person matters and makes a difference in the healing process. Avoiding speaking the name actually hurts everyone there, so share stories, cry and laugh as you recall the amazing life of a loved one.

So say their name…

3) Pull out the pictures! Sometimes the best gift and step to healing is going through old photos or videos. The gift of beautiful memories. Never letting their life be forgotten.

He comforts us. He heals the broken hearted. God is good, even when situations are not, God is. ~Psalm 56:8

He heals the brokenhearted and binds up their wounds. ~Psalm 147:3

So pull up a chair to the table, set a plate and name card for the one who is no longer there and let the stories and memories flow.

Let us honor the ones who have simply gone before us to where we want to be when it’s our turn – dancing and praising in the presence of Jesus.

There is hope in the midst of the sadness. We will see our loved ones again and that is worth celebrating.

On this Christmas Eve, I am thankful God sent His one and only Son Jesus to pave the way for each one of us who love Him. Yes, we miss the ones who have gone before us and left their seat at our table empty, yet we celebrate they are in Heaven. Seated with Jesus at the Heavenly Christmas Table. ~OC

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Singing Hallelujah

Today’s a new day! As I have walked this crazy beautiful health journey for over 22 years, I’ve had a lot of time to think about the journey. These thoughts have been like a blueprint for my journey. A journey that is radically different to the one I envisioned 22 years ago.

When I received my first diagnosis back in 2002, I was told after the shock of the diagnosis I would deal with anger and depression. Those well meaning health professionals were wrong. As crazy as it may sound, I feel like this health journey is quite possibly one of the best things that has ever happened to me. Yes, the journey has not been easy. All the surgeries, treatments and hospital stays have not always been pleasant. It’s not the blueprint I would have written for my life. But it has made me really re-evaluate a lot of the things I once held close. It’s made me appreciate my family and friends so much more and realize that possessions mean nothing when you’re faced with the real possibility of dying. Most importantly, it has made me so very aware that the God I believe in and serve is so much bigger and so much closer to me than I ever could have imagined.

Throughout history God has had many names, one of them being Immanuel, meaning ‘God with us’. I have never known that to be more true than I have the last 22 years and counting. Sometimes I wonder why I was chosen to walk this journey. But then God blesses me with a beautiful interruption and I am reminded that God has a purpose for my journey.

I know that God’s ways are higher than my own and there has been immense good that has come from this crazy beautiful health journey. God has used my health journey to bring me and others closer to Him. To bring encouragement.

As I walk through this journey, woven into the fabric of my life has been an understanding of what it means to suffer, and from that understanding has flown love, compassion and mercy.

During this journey, I have continuously leaned on Psalm 139:15-16, 2 Corinthians 4:16-18 and Hebrews 13:5. I will let you research those scriptures on your own. While this health journey and everything that has come with it may seem chaotic, I know there is purpose in this crazy beautiful journey. Not my purpose, but the purpose of a God who holds the universe in His hands… who knew me from the moment I was conceived in the womb…. who has walked beside me every day of my life. I may not understand everything that has happened along this journey and maybe on this side of Heaven I never will, but I know that whatever happens, God is in control and he has promised he will never leave me or forsake me.

I don’t know about you, but that gives me a tremendous amount of confidence that everything is going to be alright.

Because of God’s goodness I will sing Hallelujah, Hallelujah. Singing Hallelujah because I am living a blessed life. Singing Hallelujah because my bride who loves me and is standing strong with me on this journey. Singing Hallelujah because I have amazing family and friends who continue to stand with Laura and I during this unending journey. Singing Hallelujah because God walks beside me and fights the battle for me. He commands his angels concerning me and they guard me. God is my fortress, my hiding place while the battle rages around me. He stands between me and my health issues that would seek to take my life and says to the sickness “no further… you will not harm him”.

Singing Hallelujah because I am still alive…. and hopefully will be for many years to come.

There are so many reasons to sing Hallelujah…. so many…. and as long as I have a heartbeat you will hear my Hallelujah.

Whatever you see in me that you think is good comes from Heaven.

It’s not my doing…. it’s His. ~OC

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Count It All Joy

Today’s a new day! Do you sometimes have a hard time counting it all joy during the storms of life? I think we all have had those moments. You might be dealing with financial issues, employment issues, housing issues, family issues or health issues. How in the world could you find joy in all the pain and heartbreak?

One of the lessons I have learned during my crazy beautiful health journey, is that God will use these storms to help build our faith. Will we continue to stand firm in our faith when things look hopeless?

I’ve learned that my faith is like a muscle. The more I use it the stronger my faith grows. God continues to amaze me in ways I could never have imagined. God has used my health issues to strengthen my faith and to help others going through their own storms.

There have been some tough days during this journey and more to come, but I continue to see God providing my every need.

I pray as you make it through the storm you’re facing, you will know God on a deeper level and you will have more joy and peace than you know what to do with. ~OC

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Life Takes A Village

Today’s a new day! As the holidays are just a few days away, I encourage everyone to not forget about those loved ones going through loss this season. Whether the loss of a loved one happened a few days ago or decades ago, the pain is still real. Going through the grieving process can be a very dark and difficult time for a person. However, it is also hard for the loved ones of this individual. Family members and friends often struggle to find the best ways to be supportive. Plus, the holiday season can make this process that much more challenging.

If you are the loved one of a grieving individual, understanding the stages in this process is an important place to start, but there are also many genuine things you can do to show your love and help.

Reach out to them. Most grieving people find it hard to take initiative and reach out to others. You can help by doing this for them. Stay connected with them via visits, phone calls, text, email or video chat. Make sure you are still checking in on them in the months following their loss, when fewer people are doing so.

Find ways to help. Come up with specific tasks you can assist with. Volunteer to drop off pre-made dinners so they don’t have to worry about cooking. Check and see if you can run errands for them. See if there is any house or yard work they need assistance with. Maybe they just need you to sit with them.

Don’t be afraid to say their name.To share stories. Those grieving can be concerned that their loved one will be forgotten by others. Therefore, don’t be afraid to mention the loved one’s name and to share stories about the person. Those stories may bring some tears, but they could also bring some much needed laughs.

This holiday season will be tough for many this year, so take the time to reach out to them and let them know you care. Life takes a village. ~OC

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