Dear Dementia,

Today’s a new day! As most of you know, I was diagnosed with Young Onset Dementia caused by Parkinson’s last September (2024). As I have walked through the past few months, I have thought about this diagnosis and what it means for my future. So I thought I would write a letter to dementia. Hopefully it makes sense.

Dear Dementia, I often wonder if you were a person, what would I say to you? So often dementia tries to fill me with anger, sadness and frustration. But thankfully, I am able to fight off those emotions most days. But some days all those emotions get the best of me.

I think I’ll start with I am a little frustrated with you dementia. I dislike that you’ve made sharing my thoughts and having conversations a little tougher these days. I am a little frustrated that being social has become a bit more difficult for me. Since I am in the early stages of dementia, I have learned a few tricks to hide my struggles from people. But I cannot hide those struggles from myself and that makes me frustrated at times.

I am frustrated that you try and fill my days with grief, loneliness and sadness. I am saddened that some friends find it too difficult to call or visit because they do not know what to say. I am frustrated that you’re trying to take away my memories too, with you being all consuming; you sometimes make it hard to remember how things were before you.

But dementia despite all the frustration sadness and grief, I still choose to live with hope and embrace every moment of life. My bride and I still talk about future plans and trips. We will not allow you to become our identity. We celebrate those days I feel like my old self. Almost like the fog has been lifted. I embrace those days because they will not always be around. I embrace simple moments with family and friends a little more these days. I am thankful for those friends who still choose to treat me like me. Please keep doing that. Even on those days, I might not totally seem like the old me.

I am thankful that God continues to walk this journey with me. He is bigger than dementia and all the other health issues trying to take me out. They may get the best of me some days, but they will not get the victory. No, that belongs to God and I will continue to hold onto that truth.

Dear Dementia, in some ways you have taught me the true value of unconditional love, and I will use that to defeat you. I will never give up on loving my life, loving those in my life and never ever give up on beating you. You’ve brought pain and suffering to so many people’s lives, snuck in and attacked the most vulnerable. But by working with medical researchers and families affected by your cruel actions we will learn new ways to defeat you. One day I will be part of ending you, as you will never be able to take away the unconditional love that fills me up and guides me along this crazy beautiful health journey. ~OC