Today’s a new day! In late 2002, I was diagnosed with several forms of crippling arthritis. I would spend nearly a year taking multiple experimental drugs to help fight the arthritis. Unfortunately, those medications did more damage than good. Fast forward to August 2003, I had a chest scan done after coughing up blood on my way home from work. That scan would change my life forever. A few weeks after the scan a biopsy would reveal that tumor sitting in my chest was cancerous. The results would change the way I live life forever. After having the tumor removed a short time later, I thought the worst was over. I had no idea that four years later I would be diagnosed with Young Onset Parkinson’s. Of course my symptoms had shown up years before, but I never paid any attention to them. I blew it off as stress or fatigue. Then a few short years later, I would be diagnosed with Myasthenia Gravis. Maybe I should have started playing the lottery. Then about eight years later, I would be diagnosed with Gastroparesis. What are the odds? Well, some on my medical team have shared I am one in two billion. Where’s that winning lottery ticket?
Over these past twenty-two years, I have learned, and continue to learn, about living with persistent pain, near-constant fatigue and constant unsteadiness. I stress living, though I am also learning about dying. We’re all, always, dying-while-living and living while dying. My experiences with these multiple health issues simply make me more aware of death’s relentless work and also, mercifully, makes me more attentive to life’s beautiful gifts. Among them are:
The amazing gift of conversations, laughter, tears, prayers, encouragement and amazing times with family and friends.
The beautiful gift of music and books.
The beautiful gift of memories from my running days.
The beautiful gift of a call or visit from friends.
The amazing gift of sunrises and sunsets.
The gift of a quiet morning before the battle of another day begins.
The amazing gift of experiencing healing in so many different ways.
The gift of experiencing the many blessings of God.
The beautiful gift of hearing God speak to my spirit.
The gift of a quiet evening on the balcony with my bride.
The beautiful gift of almost 25 years with my bride.
The amazing gift of continuing to make beautiful memories with my bride.
The gift of outliving all the predictions of my death.
The gift of knowing God has everything under control.
In the time I have left (I am taking on the challenge to outlive the current prognosis), I intend to live close to the veil, at the threshold, and at the feet of the God upon whom angels descend and ascend. I hope to say what I hear, describe what I see, and offer what I receive because it is good, hopeful and healing. Every day, I choose to be The Man Who Refuses to Die and embrace the beautiful gifts of life. ~OC
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