Beautiful Journey

Today’s a new day! As many of you know, I was diagnosed with young-onset dementia last September (2024). Life has changed in many ways since that diagnosis. Writing down my thoughts is much tougher these days. This post literally took me several weeks to write. Finding my words to write or speak can be a daunting challenge at times. As I navigate this new reality of living with dementia, I want to share the journey with you. To answer your questions and to share my thoughts for as long as I can. The following is a question I get a lot as I continue to run this crazy beautiful health journey.

What gives you the strength to remain positive?

My Christian faith gives me deep meaning in life, giving me hope for the future and a perspective of my life being eternal, not simply limited to what I see and experience on this side of Heaven. This life and my health journey are temporary.

“So we do not lose heart. Though our self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

I have met so many people with different health challenges during my journey, all at various stages of ability due to their declining health. But each person still remains an individual, with their true inner being shining through. The eyes remain a window into someone’s soul, and reflect our humanity.

As my thoughts and overall health becomes a bigger challenge, I see more clearly the importance of relationships. I also see and feel myself traveling through a wide range of emotions, even if they become a little more scrambled with the dementia. Our emotions connect us to each other, allowing us to form relationships, which is a mark of truly being human. As this journey takes me deeper within myself, I find myself reflecting more on God and how to truly live life more for Him. This is what gives me an abiding sense of meaning as I travel on this health journey wherever it takes me. Because I know the final destination is filled with peace and ultimate healing. As a Christian, the ending is really the beginning.

So as I continue to run this health race, I remain positive, feeling that I am gaining along this journey a far better sense of what it means to be truly alive and that much can be achieved to help others as I continue travel this crazy beautiful journey. ~OC