Today’s a new day! I have been what my bride calls a “Professional Patient” for almost twenty-three years now. During this journey, I have encountered health professionals who appeared to be more concerned about egos and status than they did my well-being. For some medical providers, I was just a name on a file who happened to have very good health insurance coverage. They knew more than me because they had the title of Doctor attached to their name. Being so foreign to how the world of healthcare worked, Laura and I just went along with whatever the doctors or medical professionals directed us to do. They’re the professionals. They know what’s best for me. Right? In the famous words of Lee Corso from GameDay on ESPN, “Not so fast my friend.”
As Laura and I began to navigate this new world called the healthcare system, we found out that the most important voices were our own. If we did not stand up for my medical needs, who else would? That’s when we realized we needed to become not only our own healthcare advocates, but we needed to help other patients walking through their own crazy beautiful health journey. We recognized being a “Professional Patient” was actually a full time job.
Over the years, we have had to privately and sometimes publicly voiced some of my medical concerns. Which is not naturally part of my DNA. Or so I thought. But this is my life and my health we are talking about. As Laura and I have weaved our way through the world of health challenges, here are some of the most important pieces of advice I believe I can offer for those walking through their own health journey.
* Do not wait to speak up and share your thoughts and concerns. You know your body better than anybody else. If something doesn’t feel right or sound right speak up. If your medical team truly cares for you they will welcome this dialogue.
*Do not be afraid to get a second or third opinion. This is your life. We only get one.
*Do not be afraid to change doctors or hospitals if needed. Find a medical team that you truly feel has your best interest at heart.
*Have a great support system that can speak up on your behalf when you are unable to.
*Never stop learning about new treatments and medications that pertain to your health issue. Do not hesitate to share that information with your medical team. Once again, if your medical team cares for your well-being they will welcome those conversations.
*Take the time if your health allows, to help someone else navigate through this overwhelming healthcare system .
*Remember, it’s called practicing medicine for a reason. Your doctor and medical staff are human. Mistakes can happen. Allow those to be a teaching moment for all parties involved. Be kind and respectful, but firm.
*Be patient with yourself and your medical team. The healthcare system can be messy, stressful and complicated. Do not be afraid to show a little grace to yourself and others.
I really hope this helps someone navigating through a maze called the healthcare system. Be Your Own Best Healthcare Advocate. ~OC
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